
Sunday, September 28, 2008
HH #184, and Wishes For a Wonderful Year

Vote for Leah!
We Keep Them Around for Blog Fodder
Friday, September 26, 2008
Why I Will Be Thanking G-d This Shabbat
Wednesday, September 24, 2008
I'm Honored

Who Shall Live
Tuesday, September 23, 2008
Receiving is Giving, Part 3
The Unacknowledged Thank You. Many years ago, when I was still a beginning therapist in the hospital, feeling like a very small cog in a very big wheel, I worked with a little girl I'll call N. N was extremely familiar with the hospital, having "recovered" from a life-threatening illness only to endure recurrent long-term hospitalizations for the ongoing, irreversibly damaging side effects inflicted by the original treatment. At first, I intensely disliked N. Her voice was whiney, her face scarred, her body misshapen, and her behavior ungrateful and dismissive. After years of being in "the system," N and her mother knew everyone, in every relevant department. If one physician or nurse said No, they would work their way up the chain until they got to someone who would give them a Yes, in writing. Then, only then, would they praise that person up the wazoo, while cursing all the rest.
Many of our school staff members worked with N throughout her hospitalizations, and I myself worked with her over a period of seven years. At first her artwork was perseverative, lacking creativity and originality. She stuck with variations of the same image, drawing it over and over, in different media, sizes, and colors, but always sticking with the one theme she knew and loved and could trust to stay consistent in her rocky world. Even as N grew, reached majority and was transferred to the adults' unit, we continued our regular art sessions, until slowly, she began to branch out and blossom. She began asking me to teach her new art techniques. She requested additional images to study and work from, until reaching a point where she rarely returned to her earlier, repetitive theme. She began to feel better physically, and worked feverishly through an endless list of staff members and friends for whom she prepared thoughtful gifts in the form of her own original artwork.
All the while, N tended to express her wishes to me in the form of commands, with the please added on as an afterthought, an external politeness she was taught would work to get her what she wanted. Bring me this, Get me that, Maybe you could buy such-and-such a kind of [very expensive] paint? On occasion, she did remember to say thank you. Despite this, I grew to feel close to her and appreciate many of her positive characteristics, and and I looked forward to our sessions.
Throughout the years, N was the beneficiary of many expensive and scarce medical treatments that the hospital went out of its way to provide. On the last day of her hospital stay (after which she was released to live at home and continue her treatment as an outpatient) the hospital staff held a party for her, during which she and her mother distributed cards and gifts to every last medical staff member and social worker in the room.
At the time I felt it ironic and insulting that among all her acknowledgements, there was no mention whatsoever of me, who was present at the party, nor of any of the many additional school staff members who had accompanied N throughout all those years. Nothing. Not even a thank you.
At first I didn't know how to interpret her behavior. I thought, Could she really have forgotten all of our time together, all the work she had done, and how much meaning it held for her? Did she really think it was of that little value?
Then I stopped to think. As a form of closure, I went over my session notes. I talked to colleagues. I did some research on the psychological implications of showing, or not showing, appreciation within the therapeutic relationship. All of this helped me make sense of N's behavior. N and her mother, were simultaneously furious at, and indebted to, the medical establishment, whose original treatment had "caused" her handicaps, and whose later treatment had, at least partially, redeemed her from them. This family had always made their way through the system by showing people genuine gratitude, contaminated by their feelings of anger at the system which was responsible for all of this in the first place.*
N's involvement with the hospital school, on the other hand, was a perk, an option, a factor she did not associate directly with her medical condition or its treatment. By extension, it remained an element of her hospital stay for which she could choose to show appreciation, or not. We were one body within the hospital to whom N did not owe the debt of her life. In that light, I now understood just what our role was. We were the only form of hospital "treatment" she could like or dislike, thank or not thank, accept or reject. And she had chosen, for all that, to accept us. What bigger thanks could we ask for?
Keep the balance,
ALN
_____
* I do not mean to suggest malpractice on the part of the hospital. The side effects that afflicted N were the unfair and unpreventable results of the life-saving treatment she received for an illness she suffered as a young girl.
Receiving is Giving, Part 2
This is a tough one, yet another of those therapy issues with no clear-cut answer: the subject of thank you's.*
I used to feel really uncomfortable when a patient, or more likely, his parent, thanked me after a session. They don't owe me that, I would squirm and tell myself. I'm just doing my job.
What flawed thinking, on many accounts. Here's why:
Giving Strengthens. Human beings were not created to receive without giving, and no one in her right mind would choose a position of constant receiving, nor the sense of powerlessness, hopelessness and utter dependency that would follow. One of the first phrases my kids ever uttered was Self. SELF! and with good reason. By learning to express their own independence, my kids were strengthening themselves and their feelings of independence and humanity.
Receiving is Giving. I addressed this a bit in my original post. For hospitalized children, and especially their parents, saying thank you is one way they can give, in a setting where they are constantly on the receiving end: Countless medicines to fight the disease and the pain; Food delivered on a tray; Clean sheets with the hospital's name printed on it. Even every-day tasks, the ones that characterize a "normal" life -- such as cleaning the floor, cooking pasta, folding shirts -- are no longer an option. To this add endless non-profits and tzedakah organizations who, despite the most wonderful intentions in the world, sometimes increase the families' feeling that, yet again, they are the objects of someone else's generosity.**
A simple thank you is a way of giving, of re-establishing feelings of identity and wholeness, and of expressing love for self and others in the form of gratitude. To accept a straightforward thank you with honest appreciation is to move toward restoring the balance between giving and receiving.
I'd Like to Hear It. As for the professional, it's nice -- maybe even necessary -- to hear thank you for one's efforts, at least some of the time. Who, after all, doesn't want to be thanked, even while she's punching a clock? Work is work, and seeking some sort of recognition or appreciation, in addition to a salary, is nothing to be ashamed of. For most of us it would be false modesty to deny this. When I came to that new understanding, it became so easy to hear thank you, smile and reply "Your welcome," sometimes followed by, "it's my pleasure" or even, "Thank you too, for sharing your ideas with me."
Yes, there is a hospital story to go with all of this, but that'll have to wait for a later post...
Keep the balance,
ALN
_____
*For those of you wondering why I suddenly have so much time to post, it's becauseI have been stuck at home with the flu for three days. I'm already feeling much better, but it's too much of a risk for kids with low blood counts to be exposed to my viruses. At one good thing is coming out of it... I have time to write.
** No wonder so many families, upon finishing treatment, run to establish an NPO of their own, in a worthy and understandable effort to reestablish the sense of give-and-take equilibrium they felt prior to their experience with illness, as well as trying to help others benefit from the "insider" knowledge they have gained.
Monday, September 22, 2008
Names and Implications
Mr. Obama seems to understand that he is always an utterance away from a statement — or a phrase — that could transform him in a campaign ad from the affable, rational and racially ambiguous candidate into the archetypical angry black man who scares off the white vote. His caution is evident from the way he sifts and searches the language as he speaks, stepping around words that might push him into the danger zone.
The Five-Minute Bedtime Challenge, Part 2
It's "Over" -- Now What?
A Family in Transition
When things come in waves, I'd like to believe it's not by chance. More plausibly, it's a matter of suddenly paying attention to a person, feeling, event or idea that, until now, I let lie safely beyond my radar. It took a long time for me to become attuned to the stage following treatment, usually less intense than the period during treatment, but often no less difficult.
Last week, two mothers of children had finished their treatments, independently approached me, wanting to talk. This is a normal event in the hospital. A central aspect of working with children with long-term, life-threatening illnesses includes getting to know the children's parents, who are their primary caretakers, the central figures in their lives. Conversations with parents often focus on life outside the hospital, giving us a window into the part of their lives we rarely see.
All too often, the only reason I ever have to visit a child's home is in a vain attempt to comfort the child's parents after she is gone. Only then, and way too late, do I get a small glimpse into her real environment, the home she left behind to come to the hospital. There, her siblings and cousins, her kitchen and family room, the place to which she constantly, urgently, begged to return. How much longer do I have to be here? When can I go home? When?
But here I am, focusing on the loss, while leaving behind the majority of children, the eighty percent who heal and move on.
How can I explain the concept, when so many ways, there is no such thing as "moving on." One conversation was with K's mother, an extremely organized, straightforward mother of ten.
I thought, Here we are. We've finished chemotherapy, finished with the operations. K only needs to come to the hospital every once in awhile for her check-ups. I just want to forget it all happened, go back to my regular schedule -- the laundry, cooking -- regular things. But her brothers and sisters still want to hang out with other siblings of cancer patients, and I don't want them to.
I want to move forward, but the strangest thing has happened: I no longer have the patience I once did. I don't want to just sit down and read my little boy a story at bedtime. After all of this, you'd think I'd have learned to have even more patience, but I don't. It's very frustrating. Do you think I'm a bad mother?
I assured her that I do not think of her as a bad mother, because she's not. I think you're a normal mother who just went through an abnormal experience, I told her. You want it to be over, finished, so you can go on to the next thing. But it doesn't work that way. Your children have chosen to be in the company of children who are like them, who can understand them the way no one else can.
The rest of our talk focused on her family's gradual transition back into "regular" life, which, in so many ways, will never exist for them. We talked of how K must now shift away from being the center of the family's attention, back out to the periphery along with the rest. How her brothers and sisters are clamoring for their mother's attention, making up for lost time, but she is occupied with processing her experience and no longer has all the patience required to deal with their every-day troubles. How she herself goes from place to place, from duty to motherly duty, but she is isolated by what she has been through, by her thoughts of what could have been. She interacts with others but remains apart.
K's mother: Last night I went to my daughter's asifat horim. I tried to concentrate, talk to the other mothers. But I just couldn't.
ALN: It just wasn't the same -- you now know something they don't know. You've been through something they haven't, something they couldn't possibly understand. You know what it's like to have cancer hanging over your daughter's head, over her life. Everything's different now.
K's mother: Yes.
_____
K's hair is growing back. She remains a wonderful girl, beautiful, smiling, extremely popular and confident, a notably bright and creative student who will have no problem in school. She spent part of the summer with a tutor, catching up on her math and computer skills. Throughout her treatment, she approached everything with a directness that I envied. Even her indirect, artistic modes of expression contained a straight-forward openness and optimism that impressed everyone around her.
I give credit to her mother who is struggling to balance her own need to move on, with that of her children who, for now, are exactly where they need to be.
Keep the balance,
ALN
Sunday, September 21, 2008
Balanced Parenting
Agunot: What's Being Done, and What You Can Do
Home in Turmoil

(No, thank G-d, the home in question is not my own, only the artwork).


Friday, September 19, 2008
Back to Balance... Or Not
Ah.... it's good to be back. 



Tuesday, September 9, 2008
The Five-Minute Bedtime Challenge
1. Gather all household children in one place, preferably in close proximity to their sleeping quarters.2. Announce at the top of your lungs, In one minute from now, the [Your Family Name Here] Family is taking on the Five-Minute Bedtime Challenge!3. Outline the Six Challenge Requirements: Clothes in laundry hamper, 30 seconds. Pajamas on, 60 seconds. Bathroom break, 30 seconds. Teeth brushed, 90 seconds. School clothes out, 60 seconds. In bed and lights out, 30 seconds.4. Note the current time and shout, Ready, set, GO!5. Option A: MC the entire event in a loud, fast-paced, motivational sports announcer voice. Option B: In a fast-paced auctioneer's voice, alternate words of encouragement with a ten-second incremental countdown.6. Call Time's up! and reward your team by jump around like a crazy maniac while waving your hands in the air and cheering their accomplishment with all the genuine enthusiasm you can muster (for this part you might need to call in Alternative Reality SuperParent).7. With your last remaining kcal's of energy, run to your computer and let me know how it went.
Sunday, September 7, 2008
Shabbat in the Swamp
I'm not actually familiar with the history of the moniker swamp (Hebrew: bitza), used to describe those Jerusalem neighborhoods -- Rehavia, Katamon, and Baka among them -- populated by serious numbers of religious singles, many of whom are pushing 30, and then 40. Upon finishing up this post, I have waiting my neighbor's CD containing ten episodes of Srugim, some of which I have willingly spoiled for myself, either by reading Jameel and others (Jameel, I blame only myself) or by seeing the website previews. I have promised That Guy I Married that I will not watch all the episodes at once.
Instead of a swamp, I might have chosen to call it a forest (as in, getting lost in, or perhaps missing it for the trees), but I can understand the implications associated with getting stuck in a swamp. On Friday evening, walking back from Congregation Shira Hadasha (where, with all the women's involvement in public tefila [prayer], the fictitious but utterly believable Na'ama would probably feel extremely comfortable), I found myself stuck between the conversation of Abstract Potential, and that of Concrete Potential. Translation: the engaged thirty-somethinger in front of me was deep in wedding-and-marriage conversation with a female friend, while the pair of unattached single women behind me were engaging in a mutual status update regarding a guy they knew who had just broken up with his girlfriend that morning... from all appearances, they reported, he was ready to move on, igniting the question of whether one of them could make second-party inquiries at this early stage.
I felt left out, but not in a bad way.
Later at supper, a healthy mix of singles, marrieds, and almost-marrieds (including the above-mentioned single women and engaged couple), I sat next to the (married) hostess. We caught up on jobs and kids and learning and other stuff. We discussed life in the swamp from the standpoint of those no longer experiencing its singlehood swampiness. We agreed that were we to date now, after having been married for so long, we would be much better at it. After all, now we know what it means to have a long-term relationship, and we no longer care as much what guys think of us. In other worlds, we would finally feel free to be ourselves.
(Perhaps her husband could attest to this in both our cases, since a mutual friend set up the two of us on a date over a dozen years ago, after which, it was reported to me, he came home to his roommate and said, I don't know why I'm going out with your bashert!* His roommate? That Guy I Married, of course).
He and I (That Guy I Married, not the other one) still do make time to go on dates, though not as often as we'd like, which at least is a good sign. Being human, I sometimes wonder (don't we all?) what it would be like to be single again, going on all those dates, with all that unbridled potential. Thing is, I know it wouldn't be fun, at least, not at my age. The date itself, after all, is just a means to an end, and so packs with it that horribly heavy burden of expectations, unresolved hopes, and extreme pressure. For my married friend and me, talking about dating was easy... but we just as easily acknowledged that we're extremely relieved and thankful not to have to be doing it, and we don't envy our friends who do. She and her husband make it a point to invite singles of each sex to their Shabbat table on a regular basis... I'm not aware of whether these events have led to any long-term matches, but at least we know her husband has already earned a point.
(As for me, I'm happy to return to a certain youthful state via other means... later this Fall I'll be joining a new program of study at the university, in a field closely related to one I dreamt of as a child. I'm really excited. I can't wait to be myself... again).
Keep the balance,
ALN
_____
* Bashert: Yiddish for preordained, "meant to be," usually used in reference to a spouse, but not necessarily.